Our Planetary Body: Series Introduction

It’s Earth Day.

You probably know this already from the 37 emails you got advertising Earth Day sales.

In recent years, the attractiveness of an eco-friendly, “all-natural,” low-waste lifestyle has skyrocketed. By contrast, the states of our waterways, forests, soil, weather, ocean levels, atmosphere, biodiversity, and more are still rapidly worsening.

Perhaps less commonly-known is that this worsening is not a result of individual failings. The biggest contributors to environmental degradation are corporations and governments. Through the burning of fossil fuels, air travel, factory production, deforestation, destruction of land and waterways, and more, the biggest culprits are the exact people who want us to think it’s all our individual faults. We used too much aerosol hairspray, we didn’t recycle enough.

The “all-natural,” “go green,” and “reduce, reuse, recycle” movements we were raised with were developed in part to place the onus of responsibility on the individual. This is not entirely inappropriate–we do each have an individual responsibility to protect our common home–but nevertheless we were taught these things in part to distract from the real culprits: commercial enterprise.

What do macro-responsibilities and micro-responsibilities have in common? Gluttony. Consumption. Stuff.

Whether the stuff is clothing, plastic, packaging, dairy, crude oil, hunting, fishing, driving and traveling… we have too much stuff.

This is where we see the rise in popularity of “minimalism.” Sparsely decorated walls, capsule wardrobes, plant-based diets, wooden toys… We have made “having less” extremely attractive. The number of white, Christian influencers peddling celery juice in repurposed mason jars while wearing yesterday’s thrifted all-white ensemble they dried using woolen balls is too many to count. And yet it’s true! If we all had less stuff, the planet would be healthier.

The issue is this: The problem does not go away simply by yelling at people to have less stuff. Why? Because having less stuff requires having access to higher quality stuff that will last longer as well as package-free options that reduce waste. All of these things cost $$$$. All-natural alternatives often cost significantly more than the cheap, plastic, packaged, single-use, or fast-fashion alternatives.

This is not actually bad, because it often means companies are paying their workers a living wage in order to produce their items (Now, this is certainly not always the case. Many brands will hike up their prices simply because they know people will pay for the prestige of a minimalist life, still underpaying and overworking their employees.) But the difference in cost of living as eco-friendly of a life as possible is enormous, and ignores the very real problems that make environmental protection a clear issue of justice: Food deserts in rural and under-resourced communities, the racially-motivated locations of hazardous and pollutant factories, lack of nutritional education, monopolies on consumerism by big-box stores like Amazon and Walmart, just to name a few.

And even then, even if you have the money to invest in a minimalist lifestyle, 9 times out of 10 this requires a transition from a maximalist lifestyle through downsizing. Where does all the stuff you already have go if it doesn’t match your minimalist aesthetic? Well, if we’re not careful, to the landfill. See, by glamorizing eco-friendly minimalism, every brand on Earth is jumping onto the bandwagon and coming out with products labeled “green,” “clean,” “organic,” “natural,” “vegan,” etc. Their ads look just like that influencer’s home. If it’s a big company, their options are probably significantly cheaper than the small business they’re competing with. And yet it still all hinges on the temptation to have more stuff. This is “green-washing.”

It’s Earth Day.

Praise God for ecological leadership we’ve seen take precedence in recent years. Pope Francis’ landmark encyclical Laudato Si brought our ecological crisis to the front of Christians’ minds everywhere.

We have an ecological body. We have a planetary body. When we talk about Theology for Every Body, we must include this body, the body we are polluting and abusing. The first body entrusted to Adam’s care, before even that of Eve or their children (Genesis 2).

Maybe it feels a bit uncomfortable to call it a body. But isn’t it? With its veins, its air, its limbs, its water? Its pockets and cracks and bony plates?

From the moment I began Theology for EveryBody, I knew ecological justice would be a key component of its ethos. It must be. The Body of Christ necessarily includes the Earth, because it is from whence we all come and where we all end up. It is what we are made stewards of, a key component of so many miracles.

So, welcome to this series! It’s going to be an exceptionally fun and unique one, because not only am I going to write on ecological justice and theology (handing the metaphorical mic over to BIPOC leaders in these fields whenever I can) but I’m going to have Guy weigh in as well. That’s right folks: STEMforEveryBody crossover series!

Guy is a theoretical space physicist. His research centers on the interaction between the sun’s plasma particles and the Earth’s magnetosphere (did you even know the Earth had such a thing? A magnetic atmosphere? I sure didn’t!) This might not seem to have much to do with our climate crisis, but it does.

Guy is also currently back in night school studying public policy, as he prepares for a job transition into the world of science policy and advocacy. Issues of climate justice are nuanced, and are the responsibility of our federal, state, and local governments to navigate on the behalf of their constituents whose present and future livelihoods are immediately at stake. We’re long past imagining what the world will look like for our children’s children. Things are dire: The next 40 years will be make or break.

What’s more, Guy is passionate about learning about, advocating for, and supporting Indigenous education, leadership, land-management, and history. He has a fair bit of knowledge about and referrals to make to various Indigenous practices, leaders, scholars, traditions, and more. The conversation on ecological preservation and protection cannot occur without deferring to the ancestral knowledge of the people who cared for the land before we forced them off of it. The Church is explicitly culpable.

Guy and I have both committed to living as ecologically conscious of a lifestyle as we can. We’ve made numerous “swaps,” as well as larger dietary and lifestyle choices, that we look forward to sharing with you. Perhaps unsurprisingly: Minimalism is NOT a part of this lifestyle, and I’ll end up arguing that rejecting aesthetic minimalism might be one of the best things you can do.

I’ll also be sure and talk about ecological theologies. How can we see the Earth as God’s body? Is there such a thing as ecological sin? I’m particularly excited to explore “Franciscan Theology with my Non-Catholic Fiance.” Guy more than anyone else has introduced me to the Spirit of the outdoors, the holiness of flora and fauna, the necessity of breathing deep in fresh air, and respecting natural spaces through our own reverent activity.

If you only do one thing today to mark Earth Day: Read THIS book. Get it from your library, order it from your favorite small or used book store. Ashlee Piper’s knowledge is comprehensive, funny, easy to understand, and just might change your life. I’ve met her IRL and consider her one of my wisest and funnest Internet friends (DM me and I’ll show you our fun bathroom mirror selfies!)

Climate Change is not a myth. It isn’t disproven by dangerous, uncharacteristic temperature lows. It isn’t disproven by the saving of a few endangered or thought-to-be-extinct species or fewer plastic straws in the ocean. The only opinion we should have on Climate Change is that it is imminent. The only difference of opinion we should have on Climate Change is how we personally commit to fighting it.

I would say “we can’t wait to walk the path to a safer planet with you,” but it’s too late to walk.

We must run. As fast as we possibly can.

With urgent love — Madison and Guy

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Wheelchairs and Chandeliers

During my year of service as a Lasallian Volunteer in Oklahoma, over dinners of salad, rolls, and some sort of meat mixed with some sort of cheese, one elderly Christian Brother I lived in community with would ask about my family. He had asked many times before, but his memory was going. I told him about my parents, my military father and my stay-at-home mother. I told him about my younger brothers, about Matthew’s special needs. He listened, wide-eyed, responding with the occasional guffaw as I recounted Matthew’s tendencies, likes, and dislikes. And then he concluded his questioning with the statement he always concluded with: “He sounds like a burden. I’m amazed your parents didn’t institutionalize him. Your poor mother.”

He sounds like a burden, he sounds like a burden, he sounds like a burden. My eyes would well up. My throat would close. Sometimes I tried to explain, gently, that the world treats disabled persons differently now. Institutions are not as popular. There are more resources for family. Other times I tried to explain that his statements were uncalled for; “He’s not a burden, Brother. He’s amazing. He has the most fantastic sense of humor. He lights up my life.” Even if these strategies worked and I was able to teach this Brother something, by the next dinner that spot of short-term memory was gone, and a rehashing was inevitable. Eventually I just stopped talking at dinner.

I am still healing from those dinners. My family not being welcomed at a dinner table they weren’t even at left me feeling like the fullness of my person wasn’t welcome in community. But I think about that word often: burden. Not only because it offends me, but because the truth is, I use it all the time. About myself.

Raise your hand if you’ve ever gotten sick or injured and felt like a burden? If you’ve ever apologized for being in need of someone’s assistance? If you’ve ever felt more upset by the inconvenience of being sick than the actual symptoms of the sickness itself? If you’ve ever felt ashamed of your depression, anxiety, or grief because it makes you feel helpless and reliant upon others?

It’s hard when our culture of “being on a health journey” is supremely individualistic. We don’t think of it that way, because it’s marketed to us as being better for the planet (turning the attention outside ourselves) and better for our children (turning the attention outside ourselves.) But this wellness culture is not communal! It is built on the idea of personal habits, personal research, and personal improvement. “Self” care, rather than community care. It’s no wonder that feeling sick or being injured feel like failures! We are told at every turn that there’s a ritual for that. We simply neglected to manifest it.

Then we do ask for help and we immediately feel worse. “Because she had so many other things to do today.” “Because he had to take time off work.” “Because I had to take time off work and inconvenience my team.” “Because I missed an important test.” “Because he’s already been so stressed, and now this.”

I think back to high school sick days. At first, the thought of lying burrito’d on the couch while eating spaghetti o’s and watching endless hours of daytime television gave me a feeling of immense relief. But soon after, the relaxation wore off, and I began to panic about everything I’d missed at school that day. I also felt guilty for how much additional work my mom had to do in order to tend to me, all the while still caring for my younger brothers, one of whom needed regular one-on-one attention due to his disabilities.

Other times, taking sick days was a reprieve for my mother, who enlisted me in helping her with the day’s tasks and care needs for my siblings. Me being home meant another set of eyes and hands, even if I was injured or unwell. On these days I felt far less guilty and burdensome, but I also wasn’t actually able to rest.

I would argue we are all vacillating between one side and the other when we experience feelings of burden. We are embarrassed by our own mental, emotional, and physical impediments because they leave us less capable of doing the things that have come to be expected of us from school, work, friends, and family. We get tired of relying on other people. Our inner voices reprimand us for being so needy. We begin to panic about what resting means for our independence and success. We jump into compensating for our rest. We push ourselves to do more, more, more.

It’s our social system of constant productivity, and uneven distribution and recognition of labor, that make us feel like burdens when we are simply being human.

Your partner had a million other things to do today and now they’re caring for you. What makes tending to a loved one equally or comparably burdensome to the other things in one’s life? Is it the pressure placed on them by these other things? A parent who’s overwhelmed by child care now has one additional child to tend to who would otherwise be in school. Might it be that the onus of this burden actually falls on our lack of communal supports for parents? You miss work or school and are now irreparably behind. Might it be that our systems of education and work require so much of us, all crammed into a single day, that we feel the immense pressure not to miss even one? Your unclaimed sick days and vacation time are calling to you, reader. They’re yours for the taking!

We can turn this conversation from the negative and accusatory into the positive and imaginative in a way The Nap Ministry has been pioneering: What might rest, recovery, and health look like if we had robust systems of support in place? Less to do in a day? How would you relax if you knew you didn’t have anything else to do? What would you permit yourself to do? How would it change your relationships? Your relationship to your body?

Thinking imaginatively about how the world might look and how we might feel if we prioritized interdependent care and rest is central to working against ableism.

If you’ve read up until this point positively identifying with our cultural standards that demonize the occasional, human experience of illness and injury, I invite you to consider what this means for persons who identify as disabled and/or chronically ill. Earlier I said, “We are embarrassed by our own mental, emotional, and physical impediments because they leave us less capable of doing the things that have come to be expected of us from school, work, friends, and family.” What about the people who…always feel that way? You injure a limb and experience the inconvenience and shame of limited mobility until you heal and are back to work, double time. What about a person who will never experience normative mobility? You experience a moment of panic while out on a date and then immediately feel guilty for the way your emotions impacted your partner’s experience. What about persons who do not have the ability to emotionally regulate, ever? Should they be embarrassed? Are we embarrassed of them?

This is a tricky line to walk. For some caregivers, caring for a person with a disability or chronic illness does feel like an immense burden. Caregiving requires additional resources of money, physical assistance, emotional care, and time. Sometimes disabled persons do things that do embarrass their caregivers without intending it. These feelings might be exacerbated by crushed expectations of an able-bodied child or life-long partner.

Individuals experiencing disability may themselves identify their life experience as extremely burdensome, to them and to their loved ones. Especially a person who, for a portion of their life, experienced what we would consider normative health. Accidents and the onset of illnesses and diseases all contribute to feelings of burden.

How do we resolve this tension? Say it with me: “A situation can feel burdensome. People are not burdens.

We consider injuries and illnesses burdens to our selves and our to-dos. We consider our injured and ill selves to be burdens to others. It’s a conflation: “This illness is burdensome so I am burdensome.”

This is dangerous for people with disabilities. While you work your way out of feeling burdensome by proving to yourself and others that you can not-be-that-way by doing what is expected, people with disabilities face this slippage within their own minds like we do and from others who project this idea of burden onto them (like the Christian Brother I used to live with) because of the expectation that they cannot do what would prove otherwise.

What’s worse, when it’s status quo to work despite being unwell, but we speak with tones of amazement when we see a disabled person working despite their disability, we are betraying our preconcieved assumptions about who we thought could work. When we celebrate a disabled person getting a job because it shows they are more capable than we thought they were, we are showing exactly what we value (and it’s not humanity, it’s work.)

In returning to our imagination before: How might these feelings and experiences be ameliorated by greater resources? Greater support? Less pressure to be productive? Fewer things pulling us in fewer directions? How might a family receiving news of a child’s diagnosis feel some alleviation of their disappointment if met by robust commitments from medical professionals, family members, community partners, religious organizations, and friends to the shared responsibility of supporting the child’s wellbeing? What would our world look like if all challenges were met with these responses of togetherness?

One thing’s for sure, we would rightfully blame society for lacking sufficient resources, not the individual for lacking sufficient self-reliance. Alleviating burden means establishing and amending systems around the realities of bodily-ness, rather than contorting our bodies to fit the systems.

With this in mind, I invite us to consider why people are upset by the latest news about singer-songwriter Sia, and her new movie portraying a protagonist with autism.

For the lead role, Sia cast Maddie Ziegler, her everything-starlet, rather than an actress who actually has autism. When prodded by Twitter users and activists asking why she didn’t cast someone with the experience to portray someone with the experience, her responses can be summarized as, “It would have been burdensome for the actress to perform the requisite tasks, and it would have been burdensome for the rest of the cast and crew to adjust to the increased needs of an autistic lead actress.”

Note: the word Sia actually used was “compassionate.” Apparently, she had worked with an autistic actress before hiring Ms. Ziegler, but due to the stress this autistic woman experienced, Sia found it most “compassionate” to cast someone else. What if Sia thought she was being compassionate when really, this woman was heartbroken?

It is right for alarms to immediately blare in our minds when we see “compassionate” and “disability” in the same sentence. Especially if the compassionate action is a removal of opportunity or rights from a disabled person. Throughout history, the mistreatment, institutionalization, and even death of disabled persons has been oft-labeled the “compassionate” decision. Sometimes the words used are “merciful,” or “dignified.”

Real mercy, dignity, and compassion will never strip away the rights and humanity of any person.

The Church stresses the centrality of intrinsic human dignity to all things. This human dignity is rooted in the image and likeness of the God who created us, a God who we are told is merciful and compassionate. Any action labeled “compassionate” or “merciful” that does not pursue or protect the sustenance and fruitfulness of life, the foundation of God’s own Creation of us, is a contradiction. [CCC 1700] And remember, life can be fruitful in ways other than birth too! Your labor, your art, your service, and your prayer are also fruit that demands the fullness of this same protection.

We also need to be aware of how individual words can virtue signal. Compassion, mercy, and dignity make us think of Scripture. For me, they evoke (and invoke!) the God of Mary’s and Zechariah’s canticles:

“He has mercy on those who fear Him, in every generation. He has shown the strength of His arm. He has scattered the crowd with His conceit. He has cast down the mighty from their thrones, and has lifted up the lowly.” [Luke 1:46-55]

“He promised to show mercy to our fathers, and to remember His holy covenant…In the tender compassion of our God, the dawn from on high shall break upon us, to shine on those who dwell in darkness and the shadow of death, and to guide our feet into the way of peace.” [Luke 1:67-79]

I have memorized these canticles. During my year in Oklahoma, we prayed them at morning and evening community prayer. Every day, immediately after sitting through a meal where I defended my Matthew against accusations of burden, I sat beside the same Christian Brother in our green-carpeted home chapel, reciting these words over and over.

Community that year was overshadowed by disaster: A tornado that narrowly missed our home, the unexpected death of a dear friend to community, a life-altering illness. The months were a parade of injury, sickness, grief, and pride. The words we prayed twice daily never seemed to come to fruition.

This is how I know for certain: Just because you say a word doesn’t make it manifest. Saying “compassionate” doesn’t make you compassionate. Especially not when, in your very next breath, you tell an autistic woman sharing her experience, “maybe you’re just a bad actor,” instead of having true “compassion” and considering the bias that might be operating against her…

Now, we have no way of knowing the fullness of the Sia story. When we don’t ground statements (and movies) about disability in the lived experience of actually-disabled people, they will always be speculative and open to the influence of bias. We can operate under a lens of true compassion and assume that, with Sia’s commitment to featuring disabled, queer, and trans performers and characters as it is, her intentions were probably good. However, we are also right to operate from a lens of suspicion, and be bothered by the continuation of a narrative that working with a disabled person is burdensome. Sia is maintaining harmful expectations of labor, asking the autistic body to conform to the system of Hollywood, rather than demanding Hollywood conform to the reality of an autistic body.

“Come to me, all you who labor and are burdened, and I will give you rest. Take upon you and learn from me, for I am meek and humble of heart…” [Matthew 11:28-29]

The annotations in my New American Bible, Revised Edition expound upon this Biblical discussion of burden in its societal context: The burden to which Christ was referring was the burden of the Law. When we see “The Law” in Scripture, we should assume the referent is the Law of the Hebrews, which we know from the Old Testament was a vast and encompassing code of conduct that formed the entirety of Hebrew society. We can interpret this passage, accurately, as Christ speaking to people for whom the demands of society’s present structure and expectations are exceedingly heavy.

Christ Himself calls us to take up His mission of breaking down barriers between those burdened by society’s expectations to create a New Kingdom, one where all people, especially those outcast because of illness, are welcomed.

We start by recognizing intrinsic human dignity. We distinguish between the onset challenge and the person experiencing it. We think imaginatively about what a world might look like with greater supports. Then, we build those communities. We ask for help. We humble ourselves, remembering that humility and self-deprecation are not the same. We commit to being present to those who need assistance. We permit ourselves to be imposed upon (which is one definition of the word “meek”) and do so with gladness. This is how we lighten the load.

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